Learn about the National Alliance, our coalition members, partnerships, and how to contact us.
Explore National Alliance areas of strategic focus and access resources to move healthcare value forward.
Access helpful documents, infographics, webinars, newsletters, playbooks, and more designed to help organizations move health equity and value forward.
Access the latest National Alliance media mentions, press releases, and newsletters.
Although hemophilia is a rare disorder affecting about 25,000 people in the US, it ranks among the highest-cost healthcare conditions, averaging $270,000 per claimant annually.1
As with many rare diseases, hemophilia commonly requires lifelong treatment. Because of hemophilia’s low incidence, employers often have little to no understanding of the disease and what makes treatment so costly. Most employers hand off the development of hemophilia cost containment strategies to intermediaries, such as pharmacy benefit managers (PBMs), carriers, TPAs or pharmacy consultants. While these vendors may develop appropriate strategies that result in the lowest total cost of care, conflicts can exist that increase employer costs unnecessarily.
Get updates on health policy, delivery and payment reform, and whole person health trends sent directly to your inbox.
p: 202-775-9300
f: 202-775-1569
Learn more about our sister organization.